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Hi all...
It feels like forever since I've written.
Edwin has had a wheelchair to trial since last week. He has improved dramatically in a week of practicing, and it is working so well this is the one we will purchase for him. As you can see he uses the rubber wheel part to push himself, but it's ok. He gets around well. However, we are looking into some protection over the wheels so that he doesn't get his fingers caught in the spokes. Any suggestions about this would be much appreciated!!!
He will need a wheelchair for distances as he is still not using his walker more than several steps. Having a wheelchair as opposed to a stroller will help him become more independent...especially as he begins school in the fall.
Speaking of which, we had our transition planning meeting with Jerry from Special Ed and our EI team. He was super nice and very informative. The kiddos will attend school down the street from our new home 5 days a week from 7:55-10:35. We are so blessed to live right by the school that has a full time nurse and medical suite in the school as well as 2 aides, a nurse, and a teacher in one of the inclusion Pre-K rooms (the room Edwin will be in.) Edwin will probably do a 12 month program based on his therapy needs. They will be in separate classrooms, which we think is best due to Serena's dominance. Serena will very likely qualify for an IEP based on her PT and OT needs, and her eventual need for voice therapy from vocal cord paralysis. If her academic needs are "normal" after kindergarten she will likely be on a 504 plan for ST. We have our assessment and IEP meeting the first weeks of Sept and they begin the 29th!
Things are so wonderful in our new home. It has made a dramatic difference in the twins lives and we are so grateful to have this beautiful home. Despite the challenges and having things be different than I would have expected before giving birth to preemies, I feel extremely blessed. I cling to every little thing they *can* do and look forward to all the things they will surprise us with as time goes on. They are truly miracles and continue to amaze us every day!