I LOVE my babies :)

My rash is getting better!

Look at my big boy...Isn't he ADORABLE!?!?!?

blondie

Playing at Grammy's!

Pulled to stand by himself and is standing with one hand without resting his chest or trunk on anything! He's getting so strong!

sooo many toys!

cute guy

see my elephant?

I LOVE GRAMMY!!

Self feeding all the time like a big girl!

I am too Mom!!!

We are sooo cute!

Yum Yum!

A taste of normalcy

It is hard to forget that Serena and Edwin were born 17 weeks too early. With the nasal cannulas, oxygen tanks, pulse oximeters, poseys that I find EVERYWHERE, Serena's "special" voice, scars covering their little bodies, Serena's aspirating, Edwin's vomiting (reflux, sensitive gag reflex, and probably low tone in his mouth and throat), Edwin's low tone and inability to sit unassisted for more than a few seconds, and their small size...etc...how could you forget?
In spite of this, we have been experiencing some normalcy lately in the form of going out and about with the kids and really having a great time.

Last night we went to Boston (hour drive) to see the teens that I work with and Edwin helps train and mentor box for the qualifiers for the Junior Olympics (they don't go to the Olympics it's just the championship title.) We took S&E along. This was their first indoor boxing event and a test for how they'll do when we take them to Daddy's next local fight where he will have them carried in with him and then bring them into the ring...too cute!
Anyway, we stopped at Wendy's and the kids had chicken nuggets and french fries and EJ had a vanilla frosty (S doesn't really like sweets...whose kid is she? lol). It was so fun to have them experience American's great indulgence...fast food! They loved it...of course. And off we went to Southy for some quality boxing. Edwin is now off O2 7 hours a day and so we got to enjoy a tube free baby all show long (2 1/2 hours.) Edwin and I held each one on our laps and they did GREAT! No meltdowns, a couple whines from Edwin when he wanted to stand on the floor and cruise the chairs and a couple of "DA DA DA DAs" when Daddy left to help prepare one of our local kids for his bout. Even alone with both kids I was fine. They sat pretty still (S more than E)and it was so fun. S managed to have a smelly poop in the middle of the show(GI bug still not entirely gone!) but no worries, I changed her on a couch in an adjacent room. We were there until a little after 9:30 and Daddy wondered if he would be painted like Britney Spears by the boxing paparazzi. lol. It was fun and now Daddy gave us the green light to bring them out to events like this again.
They did both go back on their O2 in the car, and once their monitors turned on by themselves in the bag at the fights, but in terms of equipment, it was pretty cool to be free of it if only for a little while. Edwin Jr did manage to throw up in his car seat mid-sleep on the drive home, but since we have an 8 seater Toyota Sienna, Daddy sits in the middle row next to them and was able to catch it all in a blanket. He has thrown up every night since this stomach bug started over a week ago. But he did sleep through the night in his bed just fine once we got home.

Anyway, it was a taste of normalcy and I was so happy they did well even with all the loud noise and tons of people. Other than their dislike of grass, they do very well with sensory related things, which I am very thankful for. It is so nice to go places with S&E and know they will be comfortable and have fun.

And as for the many who asked whether S&E will box? HELL NO!!!! Even without their many near death experiences, lung issues (asthma?), tone issues, etc. there is no way I would let them box. I got a little teary eyed at one kid that was tearing up when he got hit really hard in the face and then when he lost. And I almost cried when I saw another kid from our gym had a bloody nose. I enjoy going out and supporting the kids we work with do what they love...I just hope S&E realize they can love golf or piano and leave boxing to their Dad.

Vocal cord consult

Real quick...as most of you know Serena has left vocal cord paralysis most likely due to her PDA ligation. Her most recent modified barium swallow showed she continues to silently aspirate on liquids...even thickened.
Soo I consulted with pulmonary and he contacted our ENT at MEEI. Our pulm has a patient with a trach who was treated by our ENT for his paralyzed cord. I'm not 100% sure of what the process entails but I know fat of some sort was injected close to the cord to help move it more midline and to give more support to the airway.
I'll know more after our consult May 30th with the ENT.
I'll definitely let you know what I learn from the consult as paralyzed vocal cords and aspiration are issues some of our peers are dealing with as well.

Healing thoughts to all our friends...it seems many are sick...including my kiddos who are on day 7 of this stomach thing! ugh...

Reflections...Edited with pictures

There is a new tool that enables a person to enter information about their 22-25 week infant and come up with statistical information regarding survival and outcome. Warning...I tried it with S&E's info and it's not pretty.
The informational tool is provided by the National Institutes of Health and it's called the NICHD Neonatal Research Network (NRN):Extremely Preterm Birth Outcome Data. Here is the link.
http://www.nichd.nih.gov/about/org/cdbpm/pp/prog_epbo/epbo_case.cfm
You enter in the gestational week, weight, gender, singleton birth or not, and whether antecorticosteroids were administered within 7 days (the steroid shots given to mom to before delivery to improve lung and brain development.)

Our kiddos stats were/are terrible at best.

Serena
Gestational Age (Best Obstetric Estimate in Completed Weeks): 23 weeks
Birth Weight: 550 grams
Sex: Female
Singleton Birth: No
Antenatal Corticosteroids: Yes

Estimated outcomes* for infants in the NRN sample are as follows:
Outcomes (I've only included mechanically ventilated infants since both were)

Outcomes for Mechanically Ventilated Infants
Survival 38%
Survival Without Profound Neurodevelopmental Impairment 25%
Survival Without Moderate to Severe Neurodevelopmental Impairment 13%
Death 62%
Death or Profound Neurodevelopmental Impairment 75% (saying essentially the same as stat 2)
Death or Moderate to Severe Neurodevelopmental Impairment 87% (saying essentially the same as stat 3)

Edwin
Gestational Age (Best Obstetric Estimate in Completed Weeks): 23 weeks
Birth Weight: 560 grams
Sex: Male
Singleton Birth: No
Antenatal Corticosteroids: Yes

Estimated outcomes* for infants in the NRN sample are as follows:
Outcomes for Mechanically Ventilated Infants
Survival 29%
Survival Without Profound Neurodevelopmental Impairment 16%
Survival Without Moderate to Severe Neurodevelopmental Impairment 7%
Death 71%
Death or Profound Neurodevelopmental Impairment 84%
Death or Moderate to Severe Neurodevelopmental Impairment 93%

Now of course these are statistics and can't assess any individual. It also doesn't account for the extra 4 days and 3 hours past 23 weeks they received in utero. However, these are pretty grim statistics nonetheless.
So I'm forced to question...what would have happened if this tool was used with our family on September 29, 2006? We knew we faced some tough odds, but the numbers we were given in terms of survival were no where close to these, and the explanation of outcomes was unclear to say the least. We, like I'm sure all parents of micro preemies, hoped our kids would defy the odds...but did we know the chances of avoiding profound, moderate and severe impairment was only approx 7-25%? No. Would the neonatologists talked us out of resuscitating with these statistics? Would we have made a decision based on these numbers?
The painfully honest answer is I don't know. I can't tell you I still would have hung to the decision of resuscitation so strongly had I been confronted with these numbers. In spite of treatment, Serena only had a 38% chance of survival, Edwin, only a 29%. Would we have consented to putting them through the pain of resuscitation and mechanical ventilation and all that goes with that for those survival odds? I honestly can't say. I know if we had seen these numbers and had more time to think, the decision would not have come as easily...at least not for me.
But we didn't have a tool. We didn't have any concrete numbers to study other than our neo doing his best to tell us what to expect in a situation where all involved believed I would stay pregnant for at least a couple more weeks. We tried to listen and make an informed choice but who were we kidding? We were not in a place emotionally and didn't have the information to really comprehend what to expect. Could you, unless you lived it or personally knew someone that had?
So what do we do with this information?


What these numbers don't reflect are individuals. Individual children with their unique personalities and physical traits. It doesn't tell me what joy these 23 weekers could possibility bring us, nor what heartache we would and surely will endure based on their health and developmental needs. The numbers can't define our individual children but I can't dismiss them as useless. I don't know what this means for the resuscitation debate as I don't even know how it effects me personally with respect to our choices as we think about one day perhaps having more children.

I never imagined that life would take the twists and turns it has. I walked and talked early, I always performed at the top of my class and attended private schools K-12 where you had to take a test to be accepted since there was no special education. I was accepted to the college of my choice and graduated cum laude. I received an academic scholarship to law school. I've always had friends, had jobs I enjoyed, guys that were interested in me, and opportunities to vacation and simply enjoy life. I am have been extremely blessed and have never really realized or appreciated it as much as I do now. My heart breaks at the thought that life won't be as kind to my beloved children. That they may not experience the many things I have been able to.
It makes me think about our world. How those of us who are "typical," often don't recognize how this world is catered to our needs and in being so leaves so many others out.
It makes me want to advocate even more for the rights of the disabled. I am starting to investigate local school systems and figure out where the best special education services are. I am determined to make Serena and Edwin's lives wonderful, amazing, fulfilling and fun. I want them to know how blessed we are to have them in our lives and want them to have the same opportunities as every other child. My hope is that they can inspire others by their determination and kindness to all. And reading the statistics they face/d makes everything they will do that much more amazing.

And a quick side note. We had a great time at the March for Babies, but I was struck by something unsettling. Where were all these kids that these statistics reflect? As far as I could tell there was one child who is disabled whose mother I am friends with and he was not a micro preemie. We had a NICU reunion tent and yet all I saw were babies...a couple with O2, including my little guy, but no older children with notable disabilities. Why is this? Our hospital is saving these micro preemies...where are the older ones at these MOD events? I know I'm bringing Serena and Edwin to MOD events and NICU reunion opportunities no matter what their status is. I think it is extremely important to show the realities of prematurity...the happy side...survival and thankfulness and the tougher sides with physical limitations, etc. This is important to me because I don't think the story of the MOD or any outlet that raises awareness about prematurity should focus on those who miraculously walk away unscathed. It's important to talk about and witness those with varying degrees of abilities. It raises consciousness and hopefully understanding and acceptance of all. Please share your March for Babies experience and let me know what you see.

***Edited*** Blogger finally allowed me to upload these pics...some more from the park that came out better without the smudge and not nearly enough from our Walk!





March for Babies

We can't rule out...

Well we just finished our March for Babies walk, and instead of cleaning the house like I should be doing, I decided to update you all while Daddy and the kiddos are napping.
I realize there is a lot I want to tell you guys and haven't yet because things have been so busy. Wednesday night the kids started with the stomach bug...throwing up everything...even bile yuk, and diarrhea. It's not completely gone, but getting better. They must have lost a pound at least! They weighed 22 pounds Tuesday before the belly bug.
I wanted to tell you all about EJ. As you know he has always been "behind" Serena developmentally. He also has significant low lone throughout, but primarily in his abdomen (trunk.) At NICU follow-up I expressed my many concerns about Edwin. Very low tone impacting his ability to sit unassisted for more than a few seconds, still belly crawling and not pushing up on hands and knees consistently, not having any meaningful words, except for the occasional "ma ma," and having no real receptive language. At first, before I really persisted, they said they didn't believe he had CP. As you know this is what everyone has said for so long. And I take it to mean it's not severe CP. I think his low tone is harder to dx than if he were hypertonic. They can still attribute it to transient dystonia, a common "preemie" issue, but in my heart I believe Edwin has cerebral palsy, and from reading here you'll remember that in spite of what every doctor/therapist has said, I have never ruled it out. EJ is an extremely lovable and happy guy, and it is really hard sometimes to see him struggle to do things. It's tough that I can't just sit him down...in the tub or anywhere else. When we go out to eat and he's in he highchair, without the support of ours at home he often slouches to the side. He could do SO much more if it wasn't for his low tone in his trunk. He pulls to stand and cruises, hangs on with one hand and balances, but he is no where close to standing unassisted, which means walking is a long way off, and I am starting to wonder if he will begin walking with the aid of a walker or something else. In terms of his developmental age in NICU follow-up he is at a 10 month old level.
Serena is doing amazing, which makes it that much harder sometimes to see her taking off and in a sense leaving her brother behind. Serena has wonderful receptive language. If you say feed the baby, she will give her toy or stuffed animal the bottle, up to its mouth and tip the bottle upside down appropriately. Yesterday I said "give Edwin the bottle" "feed Edwin the bottle" and she did. Serena is taking more and more steps and is getting a lot more confident in walking. It's still not official walking since she doesn't always take a whole bunch of steps, but she's safe to leave in a standing position and will walk with coaxing. Serena says, "bye bye" and waves, or when she knows someone is leaving (getting on their shoes, getting the keys, putting on coats.) Yesterday she took her Daddy's keys, went over the to door and said "bye bye." It was cute. Our nurse Jeanie has always put her hands up in the air and said "sooo big," if you say "sooo big" to Serena she will put her hands up in the air and smile. Priceless. She claps on demand by just saying "clap your hands." She is super smart and curious. She loves to take objects out of places and then put them back. She takes off her pants, tries to put on her socks and shoes, and washes EJ's hair in the tub. She says "ba ba" when she wants a bottle and "ma ma" when she wants me. She is determined and will not give up easily...typical toddler behavior.
So I have twins at totally different levels of development. We are beginning sign language for Edwin (and we'll do it with Bean too), because it will be easier for him to express him needs via signing since his delays are global, and it will be sometime before he speaks. He has begun clapping his hands in imitation, although it is tough for him to make smooth motions, and he'll often "miss" when bringing his hands together midline. I do see improvement in his trunk, as when he gets up to play with something above eye level and rests his bum on his knees, he has been able to let go of the object and balance for a second or two. He is also getting better at standing without as much support (he will still rest his chest on the couch or whatever he is cruising on from time to time.) The tough part for me is I will say Serena say "bye bye" and I know she'll do it and I ask Edwin to and try to teach him and it's tough that he doesn't understand. It's a balance between encouraging Serena's emerging development and curiosity and teaching Edwin, but still doing things that are on his level of understanding. I have a lot of faith that he will do things...just on his own time.
It makes it easier to accept since we knew the likelihood that as 23 weekers there would be a lot of hurdles. Because I knew they wouldn't walk away unscathed, it has helped me notice the issues and accept them. The NICU follow up report was extremely kind to me, and it made me feel good. They said it was refreshing to work with a family who was knowledgeable about prematurity and the effects. I think it takes a load off them when a parent like me says, "I know Edwin has global delays, I feel he has cerebral palsy...however mild. I'm not hung up on the label unless it can get him services he needs. I'm ok with you telling me you believe he has CP, would you give me your honest opinion." It was only after I worded things like this did I finally get someone to say "we can't rule out cerebral palsy....we'd like to see him again in 6 months." Even if it's not CP, his low tone and delays strongly effect his ability to do typical things, and therefore we need more therapy. So like I said we're going to try signing, and hopefully get PT to pass along info to EI and OT. We need less singing and circle time and more gross motor therapy. I've tried to get this point across, but maybe after the NICU follow-up report I'll have more luck. What is most important to me is that both Serena and Edwin have the opportunity to live up to THEIR potential! I am so proud of how hard they try. They are simply amazing!

There is more to write about like the March for Babies, but I'll do that tomorrow. For now enjoy pictures from our day at the park!

3 days until we walk

Well it's almost here, the 2008 March for Babies. For me, it's a day of remembrance...a day to remember how blessed we are that both our 23 weekers survived and are happy and coming along health wise and developmentally. It's a day to remember all those we've lost as a result of prematurity...including our niece Keiry. It's a day to make sure everyone who hasn't been directly affected by prematurity, realizes the epidemic that it truly is; with its significant ramifications for us all.
Your generosity has really touched us. We have surpassed our goal, and hope we can raise even more money over these next couple of days. We are raising money to support research that will hopefully uncover the causes of prematurity and help women carry their babies to term. We are raising money to help fund research that will save babies lives. And for me personally, it makes me feel like I am doing something, however small, to perhaps ensure that another family will never have to experience the heartbreak of witnessing their children cling to life, and live with the effects of their early birth forever. We are so incredibly thankful for Serena and Edwin, but prematurity has vastly changed all of our lives. We hope that the March of Dimes will continue to research with he hope that one day all babies will be born healthy.
So thank you all who have donated to Team Serena and Edwin, Jr. Thank you to all who will be walking with us this Sunday. And if you haven't donated and would like to, you can donate online at www.marchforbabies.org/494589.

Thank you all for your support!

4-0!!!!

Fight news
Two-time National Amateur champion, Edwin Rodriguez (4-0, 3 KO's) scored the only knockout of the evening, with a fourth round stoppage of Davenport, Iowas' Jeffrey Osborne (4-11-2, 1 KO), in what turned out to be an all action affair. While Rodriguez brought in all the credentials, the rugged Osborne never took a step back, as the two exchanged punch after punch throughout the four round slug-fest! Rodriguez landed combinations, body shots, and accurately placed head punches throughout, but Osborne simply kept moving forward gamely. In the final round, Rodriguez landed a big left hook to the head of Osborne, causing Osborne to immediately paw at his ear. The punch was the beginning of the end for Osborne, who was last stopped in 2006 by Ronald Hearns. Rodriguez then backed his game opponent into the corner, where he began to unleash a barrage of heavy handed punches, forcing referee Mike Ryan to jump in and call a halt to the action. Though there were only five seconds remaining in the bout, Ryan should be commended for making a tremendous call in ceasing the action, and saving Osborne from any further punishment. Time of the stoppage was 2:55 of round four.

Perioral Dermatitis

http://www.aad.org/public/publications/pamphlets/common_perioral.html

American Academy of Dermatology

What is perioral dermatitis?

Perioral dermatitis is a common skin problem that mostly affects young women. Occasionally men or children are affected. Perioral refers to the area around the mouth, and dermatitis indicates redness of the skin. In addition to redness, there are usually small red bumps or pus bumps, and mild peeling. Sometimes the bumps are the most obvious feature, and the disease can look a lot like acne. The areas most affected are within the borders of the lines from the nose, to the sides of the lips, and the chin. There is frequent sparing of a small band of skin that borders the lips. Occasionally, the areas around the nose, eyes, and cheeks can be affected. Sometimes there is mild itching or burning.

How long does it last?
If not treated, perioral dermatitis may last for months to years. Even if treated, the condition may recur several times, but usually the disorder does not return after successful treatment.

What causes perioral dermatitis?
The cause of perioral dermatitis is unknnown. But some dermatologists believe it is a form of rosacea or sunlight-worsened seborrheic dermatitis. Strong corticosteroid creams applied to the face can cause perioral dermatitis. Once perioral dermatitis develops, corticosteroid creams seem to help, but the disorder reappears when treatment is stopped. In fact, perioral dermatitis usually comes back even worse than it was before use of steroid creams. Some types of makeup, moisturizers, and dental products may be partially responsible.



Perioral dermatitis

Can it be prevented?
There is no guaranteed way to prevent perioral dermatitis. Do not use strong prescription strength corticosteroid creams on the face. Your dermatologist may have suggestions about the use of moisturizers, cosmetics, and sunscreens, and may advise against using toothpaste with fluoride, tartar control ingredients, or cinnamon flavoring.

Are laboratory tests needed to diagnose the problem?
Most of the time, no tests are necessary. A dermatologist can usually make an accurate diagnosis by just examining the skin. Sometimes, scraping or a biopsy of the skin is done. Occasionally, blood tests are ordered to eliminate other conditions that can look similar.

How is this condition treated?
An oral antibiotic, like tetracycline, is the most common treatment for perioral dermatitis. Treatment may be needed for several months to prevent recurrence. For milder cases or pregnant women, topical antibiotic creams may be used. Occasionally, your dermatologist may recommend a specific corticosteroid cream, just for a short time to help your appearance while the antibiotics are working.

What can be expected with treatment?
Most patients improve within two months of oral antibiotics. If corticosteroid creams were used for treatment, there may be a flare-up when the creams are stopped. If antibiotic treatment is stopped too early, however, the problem can come back.
*************************************************************************************
Oh yeah, so we have a dx. and NO pedi, it was NOT impetigo...ugh. After a month of struggling, we get a dx from the pedi dermatologist. I am angry, but dealing. This is a tough skin condition and it takes a looong time to heal and it can reappear. But at least we have answers.
Edwin also has eczema and we got hydrocortizone cream at 2.5% for that. He *may* be beginning this perioral dermatitis and we can put some oinment on just in case, but it's probably just eczema. But anyway, we are treating Serena with oral antibiotics and Rx skin cream. We go back for a follow-up in 6 weeks. I guess no professional pictures until this is cleared...it could be months. Damn it. Oh well, as we preemie moms know, it could be worse.
I'll update you all on their developmental eval by NICU follow-up later. I'm too tired tonight. So tune in tomorrow or Friday.

Saturday is Daddy's 4th fight! Wish him luck!

The rash that wouldn't go away and a long update on the kids

Sorry it has been so long since I last updated you all.
Things have been so busy with work, playing with S&E, and a few Dr's appointments thrown in because of this annoying rash on Serena's face that won't go away.
It all started with a small red rashy area near the corner of her mouth. I showed the Dr. after their March RSV shots and she said it was nothing to worry about and just put cream on it.
As the week passed it began to get a little worse, but not wanting to over react, I just kept an eye on it. I called the nurse the following Friday and she said no need to come in for a rash, try hydrocortisone cream over the weekend.
By Monday it was worse and I brought her in. Our pedi diagnosed her with Impetigo, although our homecare nurses disagreed with this dx. Anyway we tried the ointment for this bacterial skin infection, and there was no improvement as of Friday. Friday I brought her back in and this time the pedi tried an anti fungal cream thinking it could be a result of a reaction from her Flovent since I pointed out that the rash was outlined on her face the way the mask sits on her face with the Flovent. She also prescribed an oral antibiotic to try over the weekend if the anti fungal cream didn't work. I said, "she's ok to take this even though she's allergic to penicillin?" Pedi's response, "she's allergic to penicillin? Oh, she can't have this then." UUGGGHH good thing I said something!!!!
Anyway, the antifungal cream made her face worse...very red and angry. At this point I was becomming very frustrated and felt only a pedi dermatologist would be able to tell us what was going on. My request for a swab of her face was denied because it was rendered pointless by our pedi since we all carry staf infection on our skin. I'm no expert I just thought it might be helpful. So I call on call Sunday to say the rash is worse and I'm taking her off the anti fungal and I've started the oral antibiotic as of Sat. On call was not much help, afterall she'd never seen the rash. So Monday morning I called the pedi's office and demanded to get a referral to see the pedi derm asap. I got a call today and we see the dermatologist tomorrow at 4. In the meantime Edwin has a red spot on his chin, but that looks like eczema. He'll be seen as well.
So it's been tough, and I haven't taken many pictures because Serena's face looks so terrible. It looks a little better since the start of the oral antibiotic but it's still there all around her mouth, under her nose, and around her eyes...top lids as well. It hasn't spread anywhere else..not on her hands even and she is itching and rubbing her eyes and face quite a bit. So let's hope we get some answers tomorrow.

In addition, Serena has a slight cold with some wheezing. She went from two nights without O2 while asleep ALL night, to needing a 1/2 liter once the inflammation set in. It's so clear her tracheomalasia is severe, and with any inflammation from a cold she closes right up and needs a lot of flow to keep her oxygenating well. Without the tracheomalasia O2 would be long gone for her. Let's hope this cold passes and she can practice more nights off her O2.
Serena also had a follow-up modified barium swallow done last week. She is still penetrating and aspirating on every consistency of liquid. On her formula she aspirates with it thickened with up to 2 teaspoons of rice cereal per ounce just as she does with the 1/2 teaspoon per ounce we have been doing. She does not aspirate on stage 2 foods or solids. I haven't spoken to pulmonology or the ENT at MEEI yet, but I have phonecalls into both places. Her paralyzed vocal cord is to blame for the aspirating and there is a chance the ENT may want to attempt a procedure for it because she continues to aspirate on liquids. Thankfully, she has not had any pneumonias, and this is a very good thing. But aspiration is not a good thing and we'll have to see what the Drs want to do about it.
Today we have NICU follow-up which is 3 1/2 months over due. I'm a little nervous because EJ is quite delayed in all areas, but I'm trying to stay positive and I hope everyone is honest with me and can really give us some good feedback on what can help with his low tone in his trunk.

In spite of the rash, the aspirating, and the struggles with development, Serena and Edwin are AMAZING. They are so much fun and sooo lovable. I love spending time with them and am really looking forward to the warmer weather that should be coming our way. I can't wait to get them outside, and eventually into the pool. They are happy, playful, and curious. They bring so much joy to our lives.

So sorry Abby about not completing the questions...life is too crazy and I felt an update on S&E was more needed since I've been slacking.

Enjoy the pictures. Note Serena's rash.

Pics from about 2 1/2 weeks ago...see the small rash around her mouth
Also note the piece of turkey on her nose!











Now see the rash from this weekend after we tried the anti fungal cream...see how red?

Amazing video of our girl walking!!!!!

Photo and video editing at www.OneTrueMedia.com

We're serious about repeating this Serena. Our Beanie girl has not taken nearly as many steps since. We're plan to show her this uploaded video in the morning in hopes that it will remind her how to do it!

I'll try to post an update and pics of both kiddos tomorrow so tune in!