We're home from the hospital

Hello everyone...

So, in spite of their colds, Serena and Edwin both had their bronchoscopies on Monday morning. Everything went well, and even though I was quite worried that Edwin would have difficulty coming off the vent, he did fine.
Both took quite awhile to wake up post-procedure, but when they did they were able to oxygenate well at an increased amount of O2. In fact, Edwin is still on 1 liter and Serena is on 1/4 liter, and we are keeping her on O2 during the day. Both will remain on the higher amount of O2 until next week just to help support them after the "trauma" of being under anethesia.
We have a pulmonology appointment next week, and hopefully they will be ready to go back to their normal amounts of O2.
They have been very tired and not really themselves, although today they have been a little more back to their happy, playful, energetic selves. I think in a couple more days they will feel stronger.
So as for the results. Edwin's ariway is completely normal. We are awaiting the results of the biopsy because they also scoped his tummy. With his history of reflux they wanted to check things out there as well.
As expected, Serena's left vocal cord is paralyzed, probably a result of her PDA ligation. She also has two places in which her airway is narrowed. The ENT referred to it as tracheal malasia. This explains why Serena arches her head back while asleep...she is keeping her airway open in order to breathe.
We are very fortunate that Serena is breathing so well without O2, and that she doesn't have a trach. The ENT hopes that nature will heal her vocal cord and airway, so we are giving her 6 months, and will repeat a bronch at that time.
Hopefully, things will heal on their own, and if not we have one of the best ENTs in the world and he specializes in pedicatric voice and pediatric airway...lucky us. So I have faith everything will be fine with Serena.
Both Serena and Edwin also had tubes placed in their ears due to fluid presence, and both failed their ABRs while under anethesia. We have to have an audiology appointment to see what's up with that. Considering Edwin passed his in the NICU and Serena referred in the left ear and passed in the right in the NICU (results were the opposite in this ABR), I think the results are not accurate. The ENT said this was a possibilty especially because the tubes were just placed. I am pretty sure they can hear due to the many instances of them awaking from noises such as the phone ringing and each other's cries. We will follow up with the audiologist here in Worcester for a repeat ABR for both...fun. I'm sure they won't stay asleep for it, but let's hope I'm wrong.
We spent the night just to be sure they were okay, and got to go home first thing Tuesday morning. Of course I am still trying to recover for almost no sleep in over 24 hours, but thankfully we had a nurse last night and I slept great.
So now we have a few more appointments this month including pulmonology, the opthamologist, NICU follow-up clinic, and now audiology.
As always, we'll keep you updated!

Pictures to post tomorrow...I didn't take any in the hospital but I have some cute ones from the weekend and today.