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God, Grant me the serenity to accept the things I cannot change, courage to change the things I can, and the wisdom to know the difference.
Our story
After 5 months of a healthy pregnancy with spontaneous twins, we found out at 23 weeks and 2 days gestation something was terribly wrong. For reasons still unknown, I was in preterm labor, 3 cms dilated and my membranes with baby A were funneling out of my cervix. I lasted only 3 days on bedrest with meds in the hospital, and on September 29, 2006, Serena and Edwin, Jr were born at only 23 weeks 5 days gestation. They weighed 1lb 3oz and were 12" long. They were in the NICU for 122 days and we encountered some of the most frightening times of our lives. We nearly lost Edwin many times, and it is truly a miracle that both survived.
Serena and Edwin, Jr are amazing and show us every day just how precious life is and how amazing it can be. We are humbled by the support and love we have found since entering this world of prematurity.
Currently, our preemie "struggles" involve Edwin's hypotonic cerebral palsy and need for a reverse walker and AFOs, Serena's paralyzed vocal cord, and their continued oxygen needs while sick.
We are passionate about issues related to prematurity and about sharing the very special lives of two amazing children.
I am first and foremost a mom, who works with "at-risk" youth in after-school settings. I am currently pursuing a masters in school counseling. Edwin, Sr is a professional boxer with a record of 10-0 with 7KOs. My email address is rapa.stephanie@gmail.com
Serena and Edwin, Jr are amazing and show us every day just how precious life is and how amazing it can be. We are humbled by the support and love we have found since entering this world of prematurity.
Currently, our preemie "struggles" involve Edwin's hypotonic cerebral palsy and need for a reverse walker and AFOs, Serena's paralyzed vocal cord, and their continued oxygen needs while sick.
We are passionate about issues related to prematurity and about sharing the very special lives of two amazing children.
I am first and foremost a mom, who works with "at-risk" youth in after-school settings. I am currently pursuing a masters in school counseling. Edwin, Sr is a professional boxer with a record of 10-0 with 7KOs. My email address is rapa.stephanie@gmail.com
Blog Archive
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2007
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August
(16)
- Freaked out...EDITED...officially more freaked out
- Where did my little babies go?!?!
- Standing like a big boy with Grammy, adventures of...
- Professional picture time
- Things I love and never want to forget...
- One year ago today
- Happy 7 months adjusted and (almost) 11 months act...
- NICU Follow-up Developmental Assessment paperwork
- Real Quick!
- I'm a micro preemie mom, of course I'm writing an ...
- Exciting news...thanks for your support...***EDITE...
- A break from negativity and our trip to the zoo
- I'm angry
- New pics as promised
- Picture post...playing, tummy time, and sitting un...
- Ophthamology and NICU follow-up
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August
(16)
Other amazing preemies and their parents who inspire us!
- Adam and Andrew
- Aiden
- Aiden (beautiful in my eyes)
- Alicia
- Amelia
- Arianna
- Asher and ^Jacob^
- Ashton
- Beau
- Bennett
- Bjorn
- Bryce
- Caitlin
- Caitlyn
- Carson and Elias
- Cole
- Collin and Cyrus
- Conner and ^Braedon^
- Cooper and ^Logan^
- Coy
- Dakota
- Daniel
- Eleanor and Adam
- Eliza Grace
- Elizabeth
- Emery
- Evan
- Fletcher
- Halle Grace
- Hallie and ^Olivia^
- Holland and Eden
- Isaac and ^Rachel Grace^
- Jordan
- Kaitlyn
- Kellar
- Kinnick and Carver
- Kyle
- Landon and Isabella
- Lena and Kassie
- Lincoln
- Lucas
- Lyndsey and Sydney
- Michael
- Miracle Boy (John)
- Monkeys (Margaret and William)
- Natalie
- Nate and ^Noah^
- Nina
- Noah
- Olivia and ^Logan^
- Olivia and Avery
- Paige, Cole, and ^Kaylee^ Chasing babies
- Riley and Ross
- Ryn Tales (Ellie)
- Sammy
- Shoshanna
- Sydney
- Taylor and Alivya
- Terrible Palsy (Moo)
- The Guinn Triplets
- Three good eggs
- Tristan
- Tyler
- Tyler and his amazing Mommy, Kelly
Other blogs/websites I read
12 comments:
Those are so awesome. You all look great. I love the ones of the four of you. Does Edwin have no O2??? Gorgeous family you have
We took his cannula off for shots, and then gave him a rest and put the O2 back on, etc. He did really well and never appeared in distress. Of course snapping pictures take a second, so he wasn't off it long, but I was proud of him, and I finally have pictures of my beautiful baby boy's ENTIRE face!!!
so cute.. the pics came out awesome.. i can't wait to have ours done when the twins get here.. Only 6 weeks and 4 days to go.. yay..
OMG I love those pics! They are just way too cute. I love the one of Serena looking at Edwin Jr haha
Those pictures are gorgeous, they are just awesome and I am so happy for you. You all look so happy and glowing and no one is crying! Zazzle away.....xoxoxo Much love to you guys....
What a beautiful family!!! All of you...
you give me hope. My baby was also born at 23 weeks and your blog has been wonderful and scary at the same time. The scary part is that I had not thought about the idea of how he could get sick easily after he comes home. It feels like if he makes it through his NICU days he should be good. Your children are beautiful and they give me hope.
Thank you
Mama Ali
Blog- 1001nicunights.blogspot.com
Gorgeous pics Steph
The pictures are just gorgeous! Serena and Champ are so precious, and I honestly love all of the photos!
Love them all! How will you ever choose?
gorgeous pictures! you guys are a lovely family.
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