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God, Grant me the serenity to accept the things I cannot change, courage to change the things I can, and the wisdom to know the difference.
Our story
After 5 months of a healthy pregnancy with spontaneous twins, we found out at 23 weeks and 2 days gestation something was terribly wrong. For reasons still unknown, I was in preterm labor, 3 cms dilated and my membranes with baby A were funneling out of my cervix. I lasted only 3 days on bedrest with meds in the hospital, and on September 29, 2006, Serena and Edwin, Jr were born at only 23 weeks 5 days gestation. They weighed 1lb 3oz and were 12" long. They were in the NICU for 122 days and we encountered some of the most frightening times of our lives. We nearly lost Edwin many times, and it is truly a miracle that both survived.
Serena and Edwin, Jr are amazing and show us every day just how precious life is and how amazing it can be. We are humbled by the support and love we have found since entering this world of prematurity.
Currently, our preemie "struggles" involve Edwin's hypotonic cerebral palsy and need for a reverse walker and AFOs, Serena's paralyzed vocal cord, and their continued oxygen needs while sick.
We are passionate about issues related to prematurity and about sharing the very special lives of two amazing children.
I am first and foremost a mom, who works with "at-risk" youth in after-school settings. I am currently pursuing a masters in school counseling. Edwin, Sr is a professional boxer with a record of 10-0 with 7KOs. My email address is rapa.stephanie@gmail.com
Serena and Edwin, Jr are amazing and show us every day just how precious life is and how amazing it can be. We are humbled by the support and love we have found since entering this world of prematurity.
Currently, our preemie "struggles" involve Edwin's hypotonic cerebral palsy and need for a reverse walker and AFOs, Serena's paralyzed vocal cord, and their continued oxygen needs while sick.
We are passionate about issues related to prematurity and about sharing the very special lives of two amazing children.
I am first and foremost a mom, who works with "at-risk" youth in after-school settings. I am currently pursuing a masters in school counseling. Edwin, Sr is a professional boxer with a record of 10-0 with 7KOs. My email address is rapa.stephanie@gmail.com
Other amazing preemies and their parents who inspire us!
- Adam and Andrew
- Aiden
- Aiden (beautiful in my eyes)
- Alicia
- Amelia
- Arianna
- Asher and ^Jacob^
- Ashton
- Beau
- Bennett
- Bjorn
- Bryce
- Caitlin
- Caitlyn
- Carson and Elias
- Cole
- Collin and Cyrus
- Conner and ^Braedon^
- Cooper and ^Logan^
- Coy
- Dakota
- Daniel
- Eleanor and Adam
- Eliza Grace
- Elizabeth
- Emery
- Evan
- Fletcher
- Halle Grace
- Hallie and ^Olivia^
- Holland and Eden
- Isaac and ^Rachel Grace^
- Jordan
- Kaitlyn
- Kellar
- Kinnick and Carver
- Kyle
- Landon and Isabella
- Lena and Kassie
- Lincoln
- Lucas
- Lyndsey and Sydney
- Michael
- Miracle Boy (John)
- Monkeys (Margaret and William)
- Natalie
- Nate and ^Noah^
- Nina
- Noah
- Olivia and ^Logan^
- Olivia and Avery
- Paige, Cole, and ^Kaylee^ Chasing babies
- Riley and Ross
- Ryn Tales (Ellie)
- Sammy
- Shoshanna
- Sydney
- Taylor and Alivya
- Terrible Palsy (Moo)
- The Guinn Triplets
- Three good eggs
- Tristan
- Tyler
- Tyler and his amazing Mommy, Kelly
9 comments:
That video is awesome! The kiddos are amazing! I think we as preemie moms are truly blessed for the fact that we take NOTHING for granted: A smile, a roll, sitting up, hearing them saying our name...
I am in the middle of making a montage for Nina's first B-day and seeing those pics from the NICU...Man, people who do not live it, don't understand.
Thanks for sharing such a moving video!
Judith
Stephanie,
What a beautiful tribute to your twins. They are truly amazing....
God bless,
Randi
Oh STeph,
such a beautiful video. I would love to join your team, when is it? (that is of course if it is after miss Sophia is born:)) I am 34wks and counting:) Give them smooches for me.
So cute! I can't believe how much EJ and Emery are alike. I absolutely love the montage!
Thanks for sharing, what a great video!! I love to see your little miracles in action!
Beautiful video!!!
I can't believe how big your babies are getting. It really seems like just yesterday that I found your blog and started keeping up with you guys. Now look at you!!!
I also wanted to maybe help with the 100 readers problem. Could it be that you are adding people as authors instead of readers? Mine is private and says that I can only have 100 authors, but I have over 350 readers (and it doesn't appear to have a limit). The spaces to add readers/authors is so close (I've added people in the wrong spots before). Just thought that may be something to look into! And when you do figure it out, can you let me know...My Mom has kept up with your family for months now and said that your blog was one she used to read daily. Her computer was down when you went private and when it came back up she couldn't get in. I told her I'd try and pull some strings!!!
Hi Steph...when I first made my blog private, I accidentally added 2 or 3 people as authors. I have since changed that, and now I am the only authors and I have 100 readers. When I try to add another reader it says I am only allowed 100 readers. I have tried going to settings and other places and can't see where I can change it :(
Hmmm...I just googled the problem and it looks like you're not alone. Apparently its a new limit they've set and it has a lot of bloggers pretty upset! That sucks....hopefully they'll get enough complaints that they'll change it.
:(
They are sooo sweet ! great Job on the video:) Serina and Edwin are Beautiful.....good job mommy
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