It's a little lengthy, but I wanted to show as much as I could so you can see what I am talking about when I describe his tone.
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God, Grant me the serenity to accept the things I cannot change, courage to change the things I can, and the wisdom to know the difference.
Our story
After 5 months of a healthy pregnancy with spontaneous twins, we found out at 23 weeks and 2 days gestation something was terribly wrong. For reasons still unknown, I was in preterm labor, 3 cms dilated and my membranes with baby A were funneling out of my cervix. I lasted only 3 days on bedrest with meds in the hospital, and on September 29, 2006, Serena and Edwin, Jr were born at only 23 weeks 5 days gestation. They weighed 1lb 3oz and were 12" long. They were in the NICU for 122 days and we encountered some of the most frightening times of our lives. We nearly lost Edwin many times, and it is truly a miracle that both survived.
Serena and Edwin, Jr are amazing and show us every day just how precious life is and how amazing it can be. We are humbled by the support and love we have found since entering this world of prematurity.
Currently, our preemie "struggles" involve Edwin's hypotonic cerebral palsy and need for a reverse walker and AFOs, Serena's paralyzed vocal cord, and their continued oxygen needs while sick.
We are passionate about issues related to prematurity and about sharing the very special lives of two amazing children.
I am first and foremost a mom, who works with "at-risk" youth in after-school settings. I am currently pursuing a masters in school counseling. Edwin, Sr is a professional boxer with a record of 10-0 with 7KOs. My email address is rapa.stephanie@gmail.com
Serena and Edwin, Jr are amazing and show us every day just how precious life is and how amazing it can be. We are humbled by the support and love we have found since entering this world of prematurity.
Currently, our preemie "struggles" involve Edwin's hypotonic cerebral palsy and need for a reverse walker and AFOs, Serena's paralyzed vocal cord, and their continued oxygen needs while sick.
We are passionate about issues related to prematurity and about sharing the very special lives of two amazing children.
I am first and foremost a mom, who works with "at-risk" youth in after-school settings. I am currently pursuing a masters in school counseling. Edwin, Sr is a professional boxer with a record of 10-0 with 7KOs. My email address is rapa.stephanie@gmail.com
Blog Archive
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2008
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May
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- Laryngoplasty and ansa cervicalis to recurrent lar...
- Quick post on why we've been MIA...*Updated***
- 6-0!!!!
- URGENT!!!! *Edited*
- Pictures of their Dora kitchen and video of them r...
- An update on E after PT today
- Happy Mother's Day
- A little Serena
- Making progress...*Edited*n with update from today...
- Video of Edwin highlighting his tone
- Feeling a little better
- SOOO upset right now
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May
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Other amazing preemies and their parents who inspire us!
- Adam and Andrew
- Aiden
- Aiden (beautiful in my eyes)
- Alicia
- Amelia
- Arianna
- Asher and ^Jacob^
- Ashton
- Beau
- Bennett
- Bjorn
- Bryce
- Caitlin
- Caitlyn
- Carson and Elias
- Cole
- Collin and Cyrus
- Conner and ^Braedon^
- Cooper and ^Logan^
- Coy
- Dakota
- Daniel
- Eleanor and Adam
- Eliza Grace
- Elizabeth
- Emery
- Evan
- Fletcher
- Halle Grace
- Hallie and ^Olivia^
- Holland and Eden
- Isaac and ^Rachel Grace^
- Jordan
- Kaitlyn
- Kellar
- Kinnick and Carver
- Kyle
- Landon and Isabella
- Lena and Kassie
- Lincoln
- Lucas
- Lyndsey and Sydney
- Michael
- Miracle Boy (John)
- Monkeys (Margaret and William)
- Natalie
- Nate and ^Noah^
- Nina
- Noah
- Olivia and ^Logan^
- Olivia and Avery
- Paige, Cole, and ^Kaylee^ Chasing babies
- Riley and Ross
- Ryn Tales (Ellie)
- Sammy
- Shoshanna
- Sydney
- Taylor and Alivya
- Terrible Palsy (Moo)
- The Guinn Triplets
- Three good eggs
- Tristan
- Tyler
- Tyler and his amazing Mommy, Kelly
2 comments:
It would have driven me crazy having twins with one doing so much better developmentally! It's more than I can handle to see Dakota next to her micro preemie counterparts on most days.
I definitely see what you're talking about with his low tone but honestly I was really impressed that he can do so much and is already pulling up so well and cruising! Dakota's feet did and still do turn out just like that and her PT said it was very normal and just their way of compensating for poor balance. Sometimes her feet would actually point backwards which was freaky!
Does your PT have you doing a lot of work on the ball and exercises to work his abs? I hope the ortho appointment is helpful and that you are happy with what she/he has to say.
Maybe I am just not sure what to look for but I think he looks like he is doing well! I noticed that when he pulled to stand you commented *right foot*, Kellar did this as well, he didn't do it everytime but I feel safe in saying that the majority of the time when he pulled to stand he favored one leg. He does crawl correctly some and my my how fast he is, Kellar started his crawling out by army crawling, but only using one side of his body to do the dragging, eventually like months later he went on to correctly crawl but it wasn't without first causing me a few gray hairs that's for sure! Kellar just stood here with his head layed over in my lap and watched the whole video!! Keep us updated on the appt and how it goes...
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