Edwin sees the neurologist Friday and I will post after that, along with some video of his improvements in walking with his walker and standing. In the mean time, here are some cute pictures with the grandparents! Boxing Snack with grandpa Grammy's Birthday...crazy hair day for Serena
God,
Grant me the serenity to accept the things I cannot change, courage to change the things I can, and the wisdom to know the difference.
Our story
After 5 months of a healthy pregnancy with spontaneous twins, we found out at 23 weeks and 2 days gestation something was terribly wrong. For reasons still unknown, I was in preterm labor, 3 cms dilated and my membranes with baby A were funneling out of my cervix. I lasted only 3 days on bedrest with meds in the hospital, and on September 29, 2006, Serena and Edwin, Jr were born at only 23 weeks 5 days gestation. They weighed 1lb 3oz and were 12" long. They were in the NICU for 122 days and we encountered some of the most frightening times of our lives. We nearly lost Edwin many times, and it is truly a miracle that both survived. Serena and Edwin, Jr are amazing and show us every day just how precious life is and how amazing it can be. We are humbled by the support and love we have found since entering this world of prematurity. Currently, our preemie "struggles" involve Edwin's hypotonic cerebral palsy and need for a reverse walker and AFOs, Serena's paralyzed vocal cord, and their continued oxygen needs while sick. We are passionate about issues related to prematurity and about sharing the very special lives of two amazing children.
I am first and foremost a mom, who works with "at-risk" youth in after-school settings. I am currently pursuing a masters in school counseling. Edwin, Sr is a professional boxer with a record of 10-0 with 7KOs. My email address is rapa.stephanie@gmail.com
2 comments:
So cute!!! I can't get over how big they are. They look great. Good luck on friday
Happy Birthday Jamie!!
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