Hi everyone. I have copy and pasted everyone who has emailed. Unfortunately there were a couple i couldn't add because if you didn't directly add your email address in the comment, I couldn't always view it in email..not sure why. If you don't want to comment your email address, feel free to email me at rapa.stephanie@gmail.com and I can add you that way. I think there were about 5 of you who I couldn't get your address if it wasn't written out in a comment. SO comment again, or email me personally and I'll be glad to add you!
Update on Serena, she is doing well and back to her original O2 needs...the minimal amount while asleep. EJ is still fighting this cold...without oral steroids! He is still a little miserable and was up most of the night with puking but he was a little better today. As if I could forget about my kids being preemies. It's a constant battle against the colds!...alluding here to the convos over on Lincoln's blog. I'll be doing a post related to this once we're private!
Please add your email address so it's easy for me to copy and paste to a word document from which I'll copy and paste onto blogger. It was the best way I could think of!
Thanks for the outpouring of interest! It makes us feel so loved! :)
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God, Grant me the serenity to accept the things I cannot change, courage to change the things I can, and the wisdom to know the difference.
Our story
After 5 months of a healthy pregnancy with spontaneous twins, we found out at 23 weeks and 2 days gestation something was terribly wrong. For reasons still unknown, I was in preterm labor, 3 cms dilated and my membranes with baby A were funneling out of my cervix. I lasted only 3 days on bedrest with meds in the hospital, and on September 29, 2006, Serena and Edwin, Jr were born at only 23 weeks 5 days gestation. They weighed 1lb 3oz and were 12" long. They were in the NICU for 122 days and we encountered some of the most frightening times of our lives. We nearly lost Edwin many times, and it is truly a miracle that both survived.
Serena and Edwin, Jr are amazing and show us every day just how precious life is and how amazing it can be. We are humbled by the support and love we have found since entering this world of prematurity.
Currently, our preemie "struggles" involve Edwin's hypotonic cerebral palsy and need for a reverse walker and AFOs, Serena's paralyzed vocal cord, and their continued oxygen needs while sick.
We are passionate about issues related to prematurity and about sharing the very special lives of two amazing children.
I am first and foremost a mom, who works with "at-risk" youth in after-school settings. I am currently pursuing a masters in school counseling. Edwin, Sr is a professional boxer with a record of 10-0 with 7KOs. My email address is rapa.stephanie@gmail.com
Serena and Edwin, Jr are amazing and show us every day just how precious life is and how amazing it can be. We are humbled by the support and love we have found since entering this world of prematurity.
Currently, our preemie "struggles" involve Edwin's hypotonic cerebral palsy and need for a reverse walker and AFOs, Serena's paralyzed vocal cord, and their continued oxygen needs while sick.
We are passionate about issues related to prematurity and about sharing the very special lives of two amazing children.
I am first and foremost a mom, who works with "at-risk" youth in after-school settings. I am currently pursuing a masters in school counseling. Edwin, Sr is a professional boxer with a record of 10-0 with 7KOs. My email address is rapa.stephanie@gmail.com
Blog Archive
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2008
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January
(20)
- Transient dystonia, pulling to stand while Mommy's...
- One year and one day home
- Pictures from 1 year adjusted day
- More Edwin news
- 1-0 1 TKO
- Busy, busy
- Sometimes...
- Happy "woulda, coulda, shoulda" Day
- For all you boxing fans...
- Simply couldn't resist
- Happy Birthday Grammy
- Getting the fundraising in gear
- Video clip...pulling to stand, twin toddler fun!
- 15 month well visit
- HUGE Milestone!
- Quick update
- ER visit
- Private
- ooohh Serena Bean...
- Going private
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January
(20)
Other amazing preemies and their parents who inspire us!
- Adam and Andrew
- Aiden
- Aiden (beautiful in my eyes)
- Alicia
- Amelia
- Arianna
- Asher and ^Jacob^
- Ashton
- Beau
- Bennett
- Bjorn
- Bryce
- Caitlin
- Caitlyn
- Carson and Elias
- Cole
- Collin and Cyrus
- Conner and ^Braedon^
- Cooper and ^Logan^
- Coy
- Dakota
- Daniel
- Eleanor and Adam
- Eliza Grace
- Elizabeth
- Emery
- Evan
- Fletcher
- Halle Grace
- Hallie and ^Olivia^
- Holland and Eden
- Isaac and ^Rachel Grace^
- Jordan
- Kaitlyn
- Kellar
- Kinnick and Carver
- Kyle
- Landon and Isabella
- Lena and Kassie
- Lincoln
- Lucas
- Lyndsey and Sydney
- Michael
- Miracle Boy (John)
- Monkeys (Margaret and William)
- Natalie
- Nate and ^Noah^
- Nina
- Noah
- Olivia and ^Logan^
- Olivia and Avery
- Paige, Cole, and ^Kaylee^ Chasing babies
- Riley and Ross
- Ryn Tales (Ellie)
- Sammy
- Shoshanna
- Sydney
- Taylor and Alivya
- Terrible Palsy (Moo)
- The Guinn Triplets
- Three good eggs
- Tristan
- Tyler
- Tyler and his amazing Mommy, Kelly
6 comments:
I can't remember if I already left my email address or not but I do want to have an invite. irangel85@altmuse.com
I'm in - thank you very much for that. In the meantime, I do hope that your colds will get better over the week and that you'll soon be back on an even keel.
Thanks for the invite :)I love to read your perspective on things.
Hope your wee ones are on the mend and things are back to normal soon.
I made it!! I seem to have such a heard time with logging on to private blogs for some reason. I have a google account but my blog is not active. It keeps forgetting my account. Anyway, my blog will start in a few weeks. We all have colds here too and it sucks. I hope you all feel better soon!
I thought I'd introduce myself, I don't know if I did before. I have 31 weeks frat twin boys.
Candice
I'm in I'm in..yea!!!
ahh...much better! nice to 'see' you again :) hehe
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