Beana in her new summer hat Grammy got in FL!
Champ admiring his toys
Champ missed Grammy!
Daddy, Champ, and Uncle Ethan!
"The guys"
Uncle E feeding feeding Champ
Abd again
And again
Prettiest
The smirk!
Thanks all for your words of encouragement...sometimes I don't know what I'd do without my blog and preemie mom friends.
The twins are doing great...eating so much! Sad new...the frozen breast milk is gone...I had to stop pumping a little after the twins came home because it became so time consuming trying to feed both twins (the last two weeks in the they got hooked on bottle feedings on the overnights and certain feedings during the day when I was preparing for their arrival home. I ended up having to bottle feed them both, then try and pump once I got them settled, just to realize it was almost time to get their bottles ready for the next feed...you figure it was taking them betweeen 30-40 minutes to eat, 20-30 to hold Champ after he ate and then I wanted to hold Beanie as well because I looooove her too, then about 20 minutes to pump and store the milk. By the time I was done pumping and maybe used to restroom, it was about time to start thinking about getting bottles warmed and diapers changed for the next feeding. And let's not even talk about trying to feed and pump overnight. Anyway, we recognized it was too stressful on me and taking too much time away from enjoying the twins while asleep (holding) and awake (playing), and I am at peace with the decision I made to discontinue pumping. I tried hard, and they nursed in the NICU and received my milk for 5 months. I tried my best and that's what counts. Although of course I am a little bummed the frozen supply is gone. Luckily they had zero problem transitioning to straight formula. They gobbled it up like it tasted the same...thank GOD! I called the pedi today to ask if they still needed their iron suppliment and vitamin since now they are on straight formula. She hasn't called back yet, so we'll see.
Champ is officially off Pregnisolone (steroid) and doing great! I am so happy...let's keep praying he does fine without it. He has been on steroids FOREVER (scary thought) but he is getting big I think new lung tissue has grown and he is stronger in the lung department.
Serena has her barium swallow scheduled. We need to check on her because not only does she have a hoarse cry, she also chokes when eating quite a bit. I pray everything is okay and she will not need surgery or anything. We will also be seeing a ENT specialist in Boston, but no date yet. Anyone know anything about a barium swallow? Will she hate it? What can I expect. Of course I will research, but I like to hear the personalized stories...much more helpful I think.
All in all we had a good weekend. I got some cute pics of the twins and Champ and his Uncle Ethan!
2 comments:
First off Stephanie, I LOVE LOVE the pictures! How sweet are they!?
As for the barium swallow, it is pretty easy. Ashton has had three swallow studies done and were all good. She may not like the taste but all they really need is a few good swallows to be able to tell.
I will tell you though that Ashton always choked/coughed when he did bottle and sounded "stuffy" and "wet". But swallowing wasn't the issue, so I hope it is the same for you.
Margaret often had lots of choking while eating and was a very hard baby to feed. Even at home, she choked on her bottle for six months or more. She constantly had nasal congestion, too. Her choking and congestion was due to reflux and after we found meds that worked for her (Prevacid), the choking was greatly reduced.
Hopefully, you can figure out what is going on with Serena with this swallow study!
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