Hello all.
I have a question about therapy...no no no not for me, although I could probably use it living with Edwin Sr. Just kidding hunnie...haha.
I just wanted to know what type of, and how often, your preemies had therapy at 2 months adjusted age. Serena and Edwin's original due date was 1/21/07 so they are about 2 months. EI comes bi-weekly, but no OT or PT. She basically talks to me about what they're doing and this past week she showed me some stretches and some more tummy time positions. I just want to make sure we are not missing out on some therapy you found to be helpful, and if the frequency is approprite. I planned on having services weekly, but she seems to think the focus should be on them satting well and gaining weight; which of course I agree with, but I want to insure that we aren't missng out on something that will be helpful to Bean and Champ. What was your therapy experience like? Thanks guys!
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God, Grant me the serenity to accept the things I cannot change, courage to change the things I can, and the wisdom to know the difference.
Our story
After 5 months of a healthy pregnancy with spontaneous twins, we found out at 23 weeks and 2 days gestation something was terribly wrong. For reasons still unknown, I was in preterm labor, 3 cms dilated and my membranes with baby A were funneling out of my cervix. I lasted only 3 days on bedrest with meds in the hospital, and on September 29, 2006, Serena and Edwin, Jr were born at only 23 weeks 5 days gestation. They weighed 1lb 3oz and were 12" long. They were in the NICU for 122 days and we encountered some of the most frightening times of our lives. We nearly lost Edwin many times, and it is truly a miracle that both survived.
Serena and Edwin, Jr are amazing and show us every day just how precious life is and how amazing it can be. We are humbled by the support and love we have found since entering this world of prematurity.
Currently, our preemie "struggles" involve Edwin's hypotonic cerebral palsy and need for a reverse walker and AFOs, Serena's paralyzed vocal cord, and their continued oxygen needs while sick.
We are passionate about issues related to prematurity and about sharing the very special lives of two amazing children.
I am first and foremost a mom, who works with "at-risk" youth in after-school settings. I am currently pursuing a masters in school counseling. Edwin, Sr is a professional boxer with a record of 10-0 with 7KOs. My email address is rapa.stephanie@gmail.com
Serena and Edwin, Jr are amazing and show us every day just how precious life is and how amazing it can be. We are humbled by the support and love we have found since entering this world of prematurity.
Currently, our preemie "struggles" involve Edwin's hypotonic cerebral palsy and need for a reverse walker and AFOs, Serena's paralyzed vocal cord, and their continued oxygen needs while sick.
We are passionate about issues related to prematurity and about sharing the very special lives of two amazing children.
I am first and foremost a mom, who works with "at-risk" youth in after-school settings. I am currently pursuing a masters in school counseling. Edwin, Sr is a professional boxer with a record of 10-0 with 7KOs. My email address is rapa.stephanie@gmail.com
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2007
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- Projectile Vomit...or lack there of
- We went outside! Only after a slight O2 scare
- Pedi appointment
- No title
- Therapy
- photo shoot time!
- Okay, back to the cute pictures
- A break from the cute pictures
- Cannula Free!!! (just for a second or two)
- I captured it!
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- Adorable pictures!
- Feeling better
- Random post at 5am
- Beanie smiles!
- Audiology, Pulmonology, and Mommy's emotional brea...
- Smiles!
- Projectile Vomit! HELP!
- Pictures after Daddy's big win
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Other amazing preemies and their parents who inspire us!
- Adam and Andrew
- Aiden
- Aiden (beautiful in my eyes)
- Alicia
- Amelia
- Arianna
- Asher and ^Jacob^
- Ashton
- Beau
- Bennett
- Bjorn
- Bryce
- Caitlin
- Caitlyn
- Carson and Elias
- Cole
- Collin and Cyrus
- Conner and ^Braedon^
- Cooper and ^Logan^
- Coy
- Dakota
- Daniel
- Eleanor and Adam
- Eliza Grace
- Elizabeth
- Emery
- Evan
- Fletcher
- Halle Grace
- Hallie and ^Olivia^
- Holland and Eden
- Isaac and ^Rachel Grace^
- Jordan
- Kaitlyn
- Kellar
- Kinnick and Carver
- Kyle
- Landon and Isabella
- Lena and Kassie
- Lincoln
- Lucas
- Lyndsey and Sydney
- Michael
- Miracle Boy (John)
- Monkeys (Margaret and William)
- Natalie
- Nate and ^Noah^
- Nina
- Noah
- Olivia and ^Logan^
- Olivia and Avery
- Paige, Cole, and ^Kaylee^ Chasing babies
- Riley and Ross
- Ryn Tales (Ellie)
- Sammy
- Shoshanna
- Sydney
- Taylor and Alivya
- Terrible Palsy (Moo)
- The Guinn Triplets
- Three good eggs
- Tristan
- Tyler
- Tyler and his amazing Mommy, Kelly
2 comments:
We had an Special Instructor come to the house from after Hallie had been home a couple of weeks (we got lucky). At first, Crystal couldn't do all that much with Hallie. After about a month, we were up to doing stretches, some tummy time, working with random and predictable patterns. This was around mid November. This was also when Hallie's eating got really bad and so we asked for a reevaluation and ended up adding OT (this happened around the beginning of the year, give or take a couple of weeks). Amy, our OT, does more stretching, working with the ball, forcing Hallie to break down movements, etc. We'll be reevaluated in April and we'll see where we are -- I think that it's typical at first to get reevaluated every three months. But either way, if you feel like the kids need something, push for it. You are their best advocate and given their gestational age, oxygen status, etc, I am sure that it will be possible to access services that they need.
We have SLT weekly, OT bi-weekly and DS bi-weekly. We basically do as much as Dakota can handle. They're wanting to increase her OT to weekly but right now I think that's more than she can take.
I know some micro-preemies who don't get services at all because everything is going fine. EI follows them but that's it.
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